Nora had an ENT appointment on Friday, and as soon as we got into the exam room, she started pointing to the door, wanting to leave. This was the first time she had done that. I wondered when she would start dreading the Dr:-/ She was happy to stay once I let her play in the water-she loves to clap her hands under a running faucet:)
The drain had not been draining as much the past few days, so we decided to take it out. It is sooooooo nice to have that out. Nora also had most of the stitches removed. The Dr left 5 stitches in because the incision still isn't looking great. The right side of her face is still warm and red and firm, so she did an ultrasound to check for pockets of saliva. It showed two, but instead of draining them right away, we are going to wait to see if they'll reabsorb by themselves. Nora was pretty upset after the drain and stitch removal, so we thought we'd give her a break. I let her play in the water again afterward, which put a smile back on her face:)
Nora seems to be feeling fine. She has endless energy, which I think she siphons from me;-) She is still not eating much/anything by mouth, and we have had to really slow down the rate of her tube feedings so she doesn't throw up after each one. Lina and Belle never threw up when they were babies, so I guess Nora is just making up for that! I think she's gone a little overboard. At least it's not projectile like when she was real little. Although that was kind of nice, because sometimes it wouldn't get on her clothes, so at least I wouldn't have to clean her AND the couch/carpet/everything within four feet. But enough about puke.
This crazy little bag lady loves to wear hats and take off her pants
For those of you that may not have seen/heard about it on Facebook, my sweet friend Abby is doing a T-shirt fundraiser for Nora. If you're interested in purchasing a shirt to support Nora, check out this link
https://www.booster.com/nora-fundraiser
(Many of you have asked if it is ok to share the link-you are always welcome to share anything I post. We appreciate you spreading awareness and recruiting more prayer warriors:)
And as I already said on FB-Nora is so lucky to be loved by so many. We are so grateful to all of you that have helped lighten the load of this journey and have made Nora's surgeries in NYC possible! We are overwhelmed and humbled by your generosity. We thank God for His provision and pray His blessings on you as well!
Hope you all have a wonderful weekend!!
