I really did have this written a while ago, but I wanted to add some pictures...which meant getting them off my phone and on to the computer, which meant thinking about it when I actually had time to leave my phone hooked up for a while (because it had been a long time since I uploaded pics and there were a zillion) And then, of course, I have to look at them all...anyway, today I did, and I feel very accomplished;-) It's the little things...
We did end up making it home that night (the last time I posted) Thank you so much for your prayers! God worked everything out perfectly. Nora did great on the flight-she is such a good little girl. She slept the whole time while Angie and I played cribbage:) Thank you for all your help, Angie!!
Nora has been doing great. Her tongue stopped bleeding soon after we got home, which was a huge praise! She has had ear infections and pink eye, but those were easy fixes. She is healthy-ish at the moment, which we are so thankful for. She is such a happy little girl! It has been so great lately with her being healthy. I have even slept through the night a few times!! I've started trying to catching up on all the things that have taken a back seat for the past 15 months (I can't believe Nora is 15 months!) For a while, if it wasn't life or death, it wasn't getting my attention. My main focus was keeping my three sweeties alive and happy. I can't say that they are always happy, but they are all still living, so I count that as a win;-)
As you can see in the first picture, the right side of Nora's face can get really red when she is sick. As you can also tell from the pictures, we have to make sure we close the bathroom door! Don't you love the green and brown toilets? Perks of buying a foreclosure;-)
Nora is getting so big and doing all kinds of fun things. She has been making a lot more sounds since the procedure and is becoming a noisy little girl-I love it! She loves waving and blowing kisses and giving hugs-she is such a lover. I love seeing her tackle her sisters with a big hug and slobber kisses (as Belle calls them:) Nora always wants to be with Lina and Belle, and they are (usually;) very happy to have her around. They are so cute to watch together. I love my sweet little girls:) I could go on and on about them, but I'll spare you;-) I am so thankful I get to be their mommy (although I won't lie-there are definitely days that year-round boarding school sounds very attractive;)
Nora is a little monkey, just like her sisters:)
Nora was doing really well with eating by mouth, and then decided she didn't want to anymore. She would eat one or two bites and then refuse any more. It can be so frustrating, but I have to remind myself that she is doing so much more than we ever thought she would be able to! God is so good. We've been working with a speech therapist to help with Nora's oral feeding. With her help, we realized that the reason Nora stopped eating was because she hated the baby food! I was afraid to give her pieces of food, but she is eating real food now and loves it. She still isn't eating a ton, but she is making great progress! Such a huge praise.
These two pictures were taken exactly a year apart-what a difference a year has made!
Last week, the ENT did a scope of Nora's airway and it showed improvement! It was such an encouraging appointment-so amazing to see physical proof of God working! I don't really know what I'm looking at when they're inside, but I could definitely tell it looked better. God is so good!
Belle is great company at Nora's appointments:)
Thank you a million times over to those of you who continue to pray for Nora and our family. We are so grateful for all your support and encouragement. We thank God for you all daily! For those of you asking how to pray, please pray for continued health for Nora (and the rest of the family:) She could also use prayer for her oral feeding and overall development. She is on track with most things, but there are still some areas where she is behind. We will be going back to NY at the end of March for another airway procedure. Please also pray that these surgeries and procedures would continue to go well and be effective. Thank you!!
"Now to Him who is able to do immeasurably more than all we ask or imagine...to Him be the glory forever and ever!"
Ephesians 3:20-21
Thanks for the update! Way to go Nora!! Love the picture of her stuck in the stool.....and the fact that you left her to grab your camera - totally something I would do:) You are such a great, mama! Praise God from whom all these sweet blessings flow!!
ReplyDeleteCarrie - I came across your blog thanks to a mutual friend. While I don't know you or Nora personally, as a fellow complicated mama, I love getting to see Nora as she grows and her health improves. Thank you so much for sharing both of your stories!
ReplyDeleteI've missed seeing you guys at church. I was praying it wasn't anything serious. How cool is it to hear that she didn't eat because she didn't like it!
ReplyDeletePrayers for all of you.