Little Light of Mine

We made it to NY on Tuesday, and Nora had her surgery Wednesday. It was only two hours this time, which was nice.  I thought they were going to work on the area under Nora's right eye, but when we talked with the Dr before surgery he said they were going to work on the chin area.  It really doesn't make a difference, it'll all get done eventually:)  
The Dr was very happy with how the surgery went-thank you for praying! Every time I walk her back to the operating room and leave her on the table, it makes it so much easier knowing that she is in God's hands, and that she has many, many people praying for her. 
It took her a while to get off oxygen after the surgery.  She most likely just had a bunch of gunk in her lungs that she needed to cough up/get suctioned out. They did a chest X-ray at midnight the first night we were there, and she wasn't too happy about it. She was really fighting us, which wasn't great for the x-ray tech, but all the screaming and squirming helped her cough up a bunch of secretions, and she started breathing better after that:) It was a long, sleepless night, but the next morning she was able to get off the oxygen. They wanted us to stay another night for observation to be safe, so we got to hang out at the hospital for another day.  It wasn't the most fun for the adults (my sister Tonya came with us for the beginning of the trip) but Nora had fun walking up and down the halls, schmoozing the doctors and nurses:) We were all very ready to leave the next morning, but ended up not being discharged til 3:30 because the doctor hadn't sent the paperwork and was in surgery:-/ But we eventually made it out! We picked up Nora's prescriptions before dropping Tonya off at the airport, and then headed back to the RMH in Long Island. (thank you for your help, Tonya!)

Nora fell asleep pretty early Friday night, and then slept in til 10 on Saturday-that was SO wonderful.  And so good for her (and me;-)  You just don't get good rest in a hospital.

My sister Jenna flew in Sunday morning-it is so nice having another adult! There are a lot of people here at the RMH, but everyone is busy with their own appointments and things.  And when you're chasing a busy little girl around, it's hard to have a real conversation with someone else that is also trying to keep tabs on their own little munchkin:)

Sunday morning Nora woke up with a little red spot on her cheek, and this morning (Monday) she woke up with another red patch near her right ear.  She had a follow up appointment this morning, so I was able to ask the Dr about it.  He thinks it is a reaction to the antibiotic she is on, so she is stopping the antibiotic and changing one of her other meds.  So hopefully that will take care of it.  We would really appreciate continued prayer for healing and protection for infection!  You could also pray that her heart rate would stay above 60.  Her heart rate has been lower than usual at night, which is normal for her when she is on steroids.  When her HR goes below 60, her monitor screams, and I want to throw it out the window;-) Last night it dipped more than usual-I am hoping that will not repeat tonight! She seems to be feeling great though.  You would never know she just had surgery.  She is running around, making lots of new friends and having a blast with all the toys here. 

She will have her stitches removed on Friday morning (under anesthesia this time) and then (as long as everything goes well) we fly home Friday night.  Thank you so much for praying-we are so grateful for how God has been working in this little sweet cheeks! 

It won't let me upload pics at the moment, and I don't want to stay out here any longer (I don't get wifi in our room, so I am sitting out in the hall) I'll try again later;-)